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Butterfly Boy's Skin Falls Off With The Slightest Touch

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автор  дата 09.08.2015
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Butterfly Boy's Skin Falls Off With The Slightest Touch Subscribe: http://bit.ly/Oc61Hj MOST teenage boys love to run around and play – but ‘Butterfly Boy’ Jonathan’s skin is so delicate it falls away at the slightest knock. Fourteen year-old Jonathan Pitre, from Russell, Canada, lives in constant pain as 90% of his skin blisters and peels from his body - making it look as if he has third degree burns. The excruciating pain is so bad he has constant headaches and nausea, and often spends nights awake in agony. Helpless mum Tina Boileau, 35, has to watch her son writhe in pain as she wraps him from head to toe in bandages to ensure he doesn’t get infections. More inspirational stories like Jonathan's feature in the new series of Body Bizarre, Thursdays at 9pm on TLC. Videographer / Director: George Harrold Producer: Jack McKay, Chloe Browne Editor: Sonia Estal, Ian Phillips For more compelling footage of the amazing side of life: FACEBOOK: Like Barcroft TV - https://www.Facebook.com/BarcroftTV TWITTER: Follow @Barcroft_TV - https://www.Twitter.com/Barcroft_TV WEBSITE: For licensing & business enquiries, visit the Barcroft TV site - http://www.barcroft.tv/
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автор  дата 07.07.2015
Epidermolysis bullosa is a painful disorder that leaves the skin extremely fragile and susceptible to tearing and blistering at the slightest touch. Paul Martinez has ...
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автор  дата 07.04.2018
Ottawa teenager Jonathan Pitre died on Wednesday, April 5 after complications from a rare skin condition called epidermolysis bullosa — he may be gone, but ...
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автор  дата 01.09.2016
Powerful documentary following four remarkable girls suffering from the life-threatening and incurable genetic skin condition known as Harlequin Ichthyosis.
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автор  дата 29.06.2015
'He Took His Skin Off For Me' Dir: Ben Aston / UK / 2014 The story of a man who takes his skin off for his girlfriend, and why it probably wasn't the best idea.
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автор  дата 10.09.2017
SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61Hj The Bowen and Betts sisters grow as much skin overnight as a normal person would in two weeks. All four girls ...
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автор  дата 14.02.2017
Jonathan's life is full of pain, but equally full of love. He tells us his story and inspires the WE Day crowd.
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автор  дата 13.09.2017
Children born with epidermolysis bullosa are known as "butterfly babies" because their skin is so fragile, even a hug can cause it to blister or tear. This is their ...
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автор  дата 24.01.2015
School boy Little Song Liuchen called a 'butterfly child' suffers from Epidermolysis Bullosa, a rare condition that left his skin delicate and easily broken. CHECK ...
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автор  дата 20.11.2018
SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61Hj Despite being born with an incredibly rare condition that causes his skin to blister and tear with the slightest touch ...
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автор  дата 05.09.2018
Teenager Sohana has Epidermolysis Bullosa. Sohana lives in excruciating pain from the skin condition and goes to great lengths to protect her fragile 'butterfly' ...
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автор  дата 24.08.2015
Hey in this video I will be explaining what Jonathan Pitre a public speaker for Epidermolysis bullosa goes through and how and why I feel bad for him and this ...
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автор  дата 28.09.2017
Nicky has a rare condition nicknamed butterfly skin, which causes his skin to fall off. Subscribe to TLC UK for more great clips: ...
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автор  дата 28.06.2017
Dean's Parents were told not to expect their Son to live past 5. Dean is now 37 and living with EB. Deans story is brave and inspiring. Dean turns negatives into ...
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автор  дата 23.08.2011
i forgot to say i have a twin with it to and she almost died last week, and my typeof eb (rdeb) is 1in a million chance to have it Thanks for watching and pleease go ...
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автор  дата 16.04.2015
DOCS: The Boy Whose Skin Fell Off SUBSCRIBE: We upload a new incredible video every weekday. Subscribe to our YouTube channel so you don't miss out: ...
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автор  дата 02.10.2018
SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61Hj A TEENAGER whose skin is so fragile it bleeds and blisters as she sleeps has helped her parents raise £5 million ...
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автор  дата 06.04.2018
To donate in Jonathan's memory, go to: http://debracanada.org/product/A5CDEAD/memorialdonationdoncommmoratif.php To read more about Jonathan Pitre: ...
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автор  дата 05.06.2016
SUBSCRIBE to the Barcroft network: http://bit.ly/Oc61Hj FIVE-YEAR-OLD Evan Fasciano's condition causes his skin to grow at ten times the normal rate, leaving ...
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